So many families struggle to keep their homes heated in the winter, cool in the summer, and just to keep the lights on in general. Every state needs a Cindy Carter, the Cofounder of The Critical Medical Needs Program of Maryland. As a cancer survivor she didn't have time to worry about bills while she was battling cancer, she just needed to take care of herself. For families with disabled loved ones, this critical medical needs program opened up to serve anyone with a disability or major medical situation.
Dr. Angela Lin from Mass General Bringham sits down to discuss a very rare diagnosis of Myhre Syndrome. With so many families facing multiple diagnoses, we discuss what causes them, from genetics to other factors like alcohol causing fetal alcohol syndrome, and other agents too. This is a must watch as we also discuss the genetics of autism and the other disabilities families face, the importance of genetic testing and more.
From autism basics to the full autism journey, The Autism Science Foundation grants, awards, and funds research programs and more. Alison Singer, Co-Founder and President of the Autism Science Foundation talks about a variety of different things that you need to know. Like.... research studies have changed so much that now you can comb through which studies you and your family want to be part of; some virtual and some IRL in the states that you live so you don't have to go to far.
Emory Oaks is a college autism support program for autistic students enrolled at Emory University. Dr. Matthew Segall, Ph.D., Director of Emory Oaks, helps us explore how the program helps every autistic student at Emory thrive and have positive goal directed experiences. All while achieving the sense of belonging and community; and going on to graduate with a clear and successful plan towards employment, career development or further education.
Individuals with autism rely on the communities around them for support and understanding. Dr. Kristin Sohl, Executive Director with ECHO Autism, explains how Echo connects specialist teams with local care teams to benefit and empower autistic people and their advocates. ECHO Autism is in 6 continents and 30 + countries creating access to high-quality specialty care in local and rural communities.
Many have heard her speak, watched videos, and have read her books. We launch into 2023 with Temple Grandin. We find out how she feels about ABA therapy, talk about the different types of minds featured in her latest book and ask the fun questions too. With a full calendar of speaking engagements coming up this year, I am honored that she takes time to speak with us today!
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